Written Question·Department of Health and Social Care·UIN 15067

Spinal Muscular Atrophy: Babies

Tabled: 19 November 2024
Answered: 25 November 2024
Named Day

Question

Freddie van Mierlo

Liberal DemocratHenley and Thame

To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of testing newborn babies for spinal muscular atrophy.

Answer

Work is already underway to assess the potential merits of testing newborn babies for spinal muscular atrophy (SMA).This is following the UK National Screening Committee’s two-fold recommendation in 2023, to simultaneously develop a new cost-effectiveness...

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