Written Question·Department of Health and Social Care·UIN 48033
Spinal Muscular Atrophy: Babies
Tabled: 24 April 2025
Answered: 29 April 2025
Named DayQuestion
Freddie van Mierlo
Liberal Democrat — Henley and Thame
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with the UK National Screening Committee on timelines for implementing in-service evaluation of newborn screening for spinal muscular atrophy.
Answer
Ashley DaltonThe UK National Screening Committee (UK NSC) is working with the spinal muscular atrophy (SMA) partnership board to scope out the potential shape of the in-service evaluation into SMA. The partnership board includes clinicians, academics, patient represen...
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