Written Question·Department of Health and Social Care·UIN 48034

Spinal Muscular Atrophy: Babies

Tabled: 24 April 2025

Answered: 29 April 2025

Named Day

Question

Freddie van Mierlo

To ask the Secretary of State for Health and Social Care, what information the UK National Screening Committee has provided on the (a) format, (b) scale and (c) duration of the upcoming in-service evaluation of newborn screening for Spinal Muscular Atroph

Answer

Ashley Dalton

The UK National Screening Committee (UK NSC) is working with the spinal muscular atrophy (SMA) partnership board to scope out the potential shape of the in-service evaluation into SMA. The partnership board includes clinicians, academics, patient represen...

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