Written Question·Department of Health and Social Care·UIN 73399

Spinal Muscular Atrophy: Babies

Tabled: 29 August 2025

Answered: 5 September 2025

Question

Andy MacNae

To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure that the UK National Screening Committee’s in-service evaluation of newborn screening for spinal muscular atrophy covers a wide geography.

Answer

Ashley Dalton

Planning and development work to shape the in-service evaluation (ISE) of newborn screening for spinal muscular atrophy (SMA) is ongoing. This is being steered by the SMA partnership board that includes Department officials, the UK National Screening Comm...

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