Written Question·Department of Health and Social Care·UIN 84629
Spinal Muscular Atrophy: Babies
Tabled: 23 October 2025
Answered: 11 November 2025
Question
Dr Caroline Johnson
Conservative — Sleaford and North Hykeham
To ask the Secretary of State for Health and Social Care, when he expects to receive a formal recommendation from the UK national screening committee on newborn screening for spinal muscular atrophy.
Answer
Ashley DaltonA recommendation by the UK National Screening Committee (UK NSC) on newborn screening for spinal muscular atrophy (SMA) is expected following the conclusion of an in-service evaluation (ISE), which is needed to answer several outstanding questions related...
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