Written Question·Department of Health and Social Care·UIN 117066

Spinal Muscular Atrophy: Babies

Tabled: 2 March 2026
Answered: 16 March 2026

Question

Freddie van Mierlo

Liberal DemocratHenley and Thame

To ask the Secretary of State for Health and Social Care, what steps are being taken to ensure that screening as part of the in-service evaluation of newborn screening of spinal muscular atrophy is commenced.

Answer

Mrs Sharon Hodgson
The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...

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