Written Question·Department of Health and Social Care·UIN 117067
Spinal Muscular Atrophy: Babies
Tabled: 2 March 2026
Answered: 16 March 2026
Question
Freddie van Mierlo
Liberal Democrat — Henley and Thame
To ask the Secretary of State for Health and Social Care, what steps are being taken to mitigate disparities in outcomes associated with partial geographical coverage of the in-service evaluation of newborn screening for spinal muscular atrophy.
Answer
Mrs Sharon HodgsonThe Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...
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