Written Question·Department of Health and Social Care·UIN 117068

Spinal Muscular Atrophy: Babies

Tabled: 2 March 2026

Answered: 16 March 2026

Question

Freddie van Mierlo

To ask the Secretary of State for Health and Social Care, what assessment has been made of the potential impact that delays in access to newborn screening for spinal muscular atrophy will have on those not part of the upcoming in-service evaluation of scr

Answer

Mrs Sharon Hodgson

The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...

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