Written Question·Department of Health and Social Care·UIN 118633

Spinal Muscular Atrophy: Babies

Tabled: 6 March 2026

Answered: 23 March 2026

Question

Freddie van Mierlo

To ask the Secretary of State for Health and Social Care, what comparative assessment he has made of expected outcomes for babies with spinal muscular atrophy living in areas (a) included in the in-service evaluation of newborn screening for SMA and (b) n

Answer

Mrs Sharon Hodgson

The Government recognises the challenges faced by those living with rare diseases and their families and is committed to improving outcomes. This is why the National Health Service is planning a large-scale in-service evaluation (ISE) of screening for spi...

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