Written Question·Department of Health and Social Care·UIN 103761
Spinal Muscular Atrophy: Children
Tabled: 7 January 2026
Answered: 23 January 2026
Question
Jim Shannon
Democratic Unionist Party — Strangford
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support parents whose children have been diagnosed with spinal muscular atrophy.
Answer
Ashley DaltonPlanning for a large-scale trial across the National Health Service is underway, where hundreds of thousands of babies will be screened for spinal muscular atrophy (SMA) from next year to help build the evidence base needed to support a national screening...
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