Written Question·Department of Health and Social Care·UIN 76509
Terminal Illnesses: Medical Treatments
Tabled: 10 September 2025
Answered: 9 October 2025
Named DayQuestion
Freddie van Mierlo
Liberal Democrat — Henley and Thame
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that NICE appraisals for (a) Duchenne muscular dystrophy and (b) other rare, progressive conditions take into account urgency of access.
Answer
Dr Zubir AhmedThe National Institute for Health and Care Excellence (NICE) aims wherever possible to issue guidance on new medicines close to the time of licensing to ensure that patients can benefit from rapid access to clinically and cost-effective new medicines. NIC...
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