Written Question·Department of Health and Social Care·UIN 49021
Tofersen
Tabled: 29 April 2025
Answered: 8 May 2025
Question
Tonia Antoniazzi
Labour — Gower
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of access to Tofersen through the Early Access Programme for people with SOD1 motor neurone disease.
Answer
Karin SmythCompanies may put in place Early Access Programmes (EAPs) to allow for early access to new medicines that do not yet have a marketing authorisation. Participation in EAPs is decided at an individual National Health Service trust level, and under these pro...
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