Written Question·Department of Health and Social Care·UIN 77281

Tofersen

Tabled: 15 September 2025

Answered: 13 October 2025

Named Day

Question

Manuela Perteghella

To ask the Secretary of State for Health and Social Care, what discussions he has had with NHS England on ensuring adequate numbers of NHS employees are available to administer Tofersen.

Answer

Karin Smyth

I have had no such discussions. The National Institute for Health and Care Excellence (NICE) has selected tofersen for treating amyotrophic lateral sclerosis caused by SOD1 gene mutations as a topic for guidance development through its Highly Specialised ...

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