Written Question·Department of Health and Social Care·UIN 81095

Tofersen

Tabled: 10 October 2025

Answered: 30 October 2025

Question

Cameron Thomas

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure equality of access to tofersen by people diagnosed with SOD1 motor neurone disease across England.

Answer

Dr Zubir Ahmed

The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effectiv...

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