Written Question·Department of Health and Social Care·UIN 104132
Tofersen
Tabled: 8 January 2026
Answered: 19 January 2026
Question
Sir Geoffrey Clifton-Brown
Conservative — North Cotswolds
To ask the Secretary of State for Health and Social Care, how many people diagnosed with SOD 1 MND are currently unable to access tofersen.
Answer
Dr Zubir AhmedCompanies may put in place Early Access Programmes (EAPs) to allow early access to new medicines which have been licensed by the Medicines and Healthcare Products Regulatory Agency, but which do not yet have National Institute for Health and Care Excellen...
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