Josh Dean

Josh Dean

Labour — Hertford and Stortford

Speaking in the House of Commons on 22 July 2025

Debate

Metachromatic Leukodystrophy Screening

Contribution

In 2024, two-year-old Lily Stock was diagnosed with metachromatic leukodystrophy, a rare and progressive disease that will, in her family’s words, “slowly take Lily away”. Libmeldy, a lifesaving gene therapy, is available through the NHS, but I understand that it must be administered before symptoms develop. Sadly, that means it is too late for Lily to benefit from the treatment. Emily and Sean, Lily’s parents, are campaigning for MLD screening to be added to the heel-prick test on newborns, so that MLD can be identified early and treated effectively and no family will have to go through this devastating experience. Will the Minister and her officials look into adding MLD screening to the heel-prick test, and will she and the Secretary of State join me to meet Lily’s family and hear their story at first hand?

More from Josh Dean

Other recent Hansard contributions by the same speaker.

About Hansard

Hansard is the official verbatim record of proceedings in the UK Parliament. Every word spoken in the Commons and Lords is recorded and published — this page is a single contribution from that record.

For Josh Dean's full parliamentary record including voting history, expenses and all other contributions, see the Josh Dean report card.