Luke Taylor

Luke Taylor

Liberal Democrat — Sutton and Cheam

Speaking in the House of Commons on 22 June 2026

Debate

Spinal Muscular Atrophy: Newborn Screening Test

Contribution

I was recently contacted by a constituent whose daughter was diagnosed with SMA type 1 at five months old and, in her own words, five months too late. Her child is now two and needs a wheelchair. She cannot sit or stand unaided. She depends on specialist equipment and multiple weekly visits and appointments. That is no way for a toddler to live. Does the hon. Member agree that families like my constituents urgently need the Government to fast-track the roll-out of a testing programme to all children in all areas to ensure the best possible outcomes for children affected by the condition?

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