Contribution
I completely agree. This comes back to one of the systemic barriers that people face throughout the Access to Work system, and the barriers to employment for autistic people.
Access to Work sounds good on paper. In practice, it has become a bureaucratic maze that far too many autistic people simply cannot navigate. I have spoken to constituents who waited six months, nine months and even more than a year for applications to be processed. It is simply not good enough. I have heard from people who have lost job offers because the scheme could not provide basic adjustments in time, from others whose support was suddenly cut back without explanation, and from employers, especially small ones, who gave up trying to help because the process was so unclear and too slow.
Let us be honest: if Access to Work was a business, it would have gone under years ago. It is inefficient, unaccountable and detached from the lived reality of the people it is meant to serve. There is no consistency, no urgency and seemingly no understanding of autism. Many of the assessors have had little to no training in neurodiversity. Applicants are repeatedly asked to prove their condition and justify basic needs, and to fill in complex forms that would test the patience of anyone, let alone someone who suffers from communication or executive function issues that are daily challenges. It is not empowering; it is humiliating.
The worst part of all is that people’s lives are on hold while they wait. I met one man who was offered a job by a local company. He was up front about his needs, honest, open and hopeful, and the employer was supportive, but trying to get adjustments in place through Access to Work took so long that he ended up losing the job offer. His confidence was shot. There is nothing about that that is acceptable, in any way, shape or form. Worryingly, that is not an isolated story. This is happening up and down the country, and it is something that people regularly email me about. What makes it worse is that we have known for years how to fix it. Backlogs can be cleared with proper staffing and resourcing. Delays can be reduced by digitising the system and simplifying forms. Training can be improved so that assessors actually understand neurodiversity. But the Government are seemingly sitting on their hands.
The Buckland review made sensible suggestions and recommendations: awareness campaigns, better recruitment practices, inclusive workplace design and real career progression support. None of that requires new legislation. What did we get instead? Nothing. A review was launched and delayed, and now we are told that we might not get a proper Government response at all. It is really frustrating. Autistic people, who have waited long enough for change, are seemingly left out in the cold again.
I have heard about recruitment processes that are commonly exclusionary and job adverts with open-ended interview questions that just make it impossible for people. When I met the Harrogate branch of the National Autistic Society, we spent about an hour and a half talking through these barriers. What really resonated with me is the desire and passion of people with autism who want to contribute, and we are simply not letting them.
People’s fear of disclosure was also raised. They do not want to explain or even talk about their autism because they are not convinced that employers will help. One constituent of mine had been happily in employment for seven years, with the support of a really helpful line manager. When that manager left, there was seemingly a breakdown in the relationship with the workplace, which left her without the necessary adaptations and support. She ended up losing the job and has now been struggling to find alternative employment for two years.
What needs to happen? We need a complete overhaul of Access to Work—not tweaks or new guidance, but a root-and-branch rebuild. That means clear targets for processing times, so that people are not left waiting for months; dedicated neurodiversity teams who actually understand the conditions that they are assessing; transparency, so that applicants can track their progress and appeal decisions easily; automatic continuity of support, so that when people change roles, they are not thrown back to square one; and, above all, trusting autistic people that they know what they need. If we did that, we would not only help thousands into work, but restore faith in a system that currently does the opposite.
This is not meant to be about schemes and structures; it is about people. A woman in Harrogate told me that she had recently given up looking for work altogether—not because she does not want to work, but because the last time she tried to get support, she was made to feel like a fraud. She said:
“I can cope with being autistic. I can’t cope with being disbelieved.”
That sentence should haunt this Government. We talk endlessly in this place about productivity, growth and getting more people into work, yet we actively exclude people who want and are ready to work, because our systems are so rigid and slow.
Fixing Access to Work will not solve everything, but it is one of the easiest, quickest and most practical steps that could make employment fairer for autistic people. If we linked that together with a proper SEND strategy that captures early need, supports families, trains teachers and equips young people with confidence, we would finally have a joined-up system that might be better at supporting people with autism from childhood into adulthood. That is what inclusion really means.
I will end with this thought. Another constituent told me that what makes work hard for them is not being autistic, but the world around them not understanding what they need to thrive. There is a thread running through everything we have heard today. Autistic people do not need to change who they are. It is the systems, services and structures that need to change. Access to Work could be a bridge between ability and opportunity, but right now it is a barrier. Until that changes, we will keep on losing potential, wasting talent and letting people down. I urge the Minister to fix Access to Work and SEND, and to start building a society that sees autistic people not as a problem to solve, but as part of the solution.